Resuming daily routine: practical tips for those living with Parkinson's disease

Getting back into one's routine after a break can be particularly challenging for those living with Parkinson's.

According to a recent study, QoL tends to worsen in the spring and improve in the fall. This suggests that the return from the fall vacations may be a crucial time to monitor and adjust symptom management, especially those related to depression, which emerges as a major determinant of QoL at this time of year.

Planning Gradually returning to routine

Resuming daily activities takes time and attention, especially for those living with Parkinson's. It is important not to rush and give yourself time to readjust. Starting with simpler tasks and gradually increasing engagement can help reduce stress and fatigue, making re-entry more manageable.

A recent study underscores the importance of a personalized approach in physical rehabilitation for patients with Parkinson's disease, highlighting how gradual programs, tailored to individual abilities, can improve adherence and long-term outcomes. Organizing the day into times of activity and rest is essential to maintain energy balance. By taking regular breaks, physical and mental overload can be avoided, ensuring more sustainable energy management.

In addition, considering the use of supportive tools or techniques, such as ergonomic devices or relaxation exercises, can make it easier to resume daily activities more smoothly and safely.

Facing challenges during times of stress

During times of stress, such as returning from vacation or other times of change, it is helpful to remember some simple strategies for maintaining serenity. Planning ahead, setting realistic expectations, and relying on a support network can help mitigate stress.

These techniques are particularly relevant for times of the year when routines are interrupted, such as the vacations, during which it is important to maintain some degree of structure to best manage Parkinson's symptoms.

In addition, reducing stress is crucial because its increase is associated with worsening symptoms, especially those related to tremor, fatigue, and sleep disturbances.

Managing the anxiety of change

Facing a new routine can generate anxiety, a common feeling for those living with Parkinson's. Techniques such as mindfulness, breathing exercises and other relaxing activities can be effective tools for managing stress and encouraging a more peaceful approach.

One study found that anxiety and depression can negatively affect the quality of life of Parkinson's patients, exacerbating symptoms and making it more difficult to manage the disease. Therefore, incorporating relaxation techniques into daily routines can not only help manage stress, but also mitigate the negative impact of these conditions on disease progression. Psychological support can also offer valuable help in managing these emotions.

Review drug therapy and medical support

The return to a more structured routine may be an ideal time to review, with one's neurologist or physician, the medication therapy. Needs may change over time, and an adjustment in therapy may be necessary to better cope with daily living.

A recent study recommends continuous monitoring and adjustment of therapy to ensure that it remains effective during changes in daily routine.

Scheduling regular checkups and maintaining open communication with health professionals is crucial for optimal disease management.

Integrate exercise in the daily routine

Physical activity is essential for those living with Parkinson's disease. Maintaining a regular exercise routine, even light exercise, helps improve mobility, strength and balance. Activities such as yoga, swimming, walking, and gentle exercise are particularly indicated.

Recent studies have shown that exercise not only helps improve physical health, but can also slow the progression of motor symptoms of the disease, while improving mood and reducing muscle stiffness.

Cultivating social relationships and managing work

Resuming daily activities does not mean isolating oneself. Social relationships are essential for emotional and psychological well-being. Participating in support groups, recreational activities or simply keeping in touch with friends and family can have a positive impact on quality of life.

In addition, it is important to be aware of one's rights in the workplace. People with Parkinson's have the right to request reasonable accommodations, such as changing work schedules or reassigning specific tasks, to better manage their symptoms. Maintaining an open dialogue with the employer and coworkers can facilitate the creation of a work environment that supports productivity and well-being.

Getting back into a daily routine can seem challenging for those living with Parkinson's, but with careful planning and the right support, it is possible to face this time with serenity and confidence. By maintaining an active lifestyle and cultivating meaningful relationships, this transitional period can become an opportunity to renew one's energy and face daily life with greater awareness and determination.

Sources:

• Wu L, Li S, Tang Y, et al. Quality of life: Seasonal fluctuation in Parkinson's disease. Front Neurol. 2023;13:1035721. Published 2023 Jan 4. Janssen Daalen JM, Hubbers J, Sharifi Bonab M, et al. How Vacations Affect Parkinson's Disease. Mov Disord Clin Pract. 2022;10(1):151-153. Published 2022 Nov 2.
• Fox, S. H., et al. “Management of Parkinson's disease: practical guidelines.” The Lancet Neurology, vol. 17, no. 5, 2018, pp. 386-396.
• Park A, Stacy M. Non-motor symptoms in Parkinson's disease. J Neurol. 2009;256 Suppl 3:293-298.
• Olanow CW, Stern MB, Sethi K. The scientific and clinical basis for the treatment of Parkinson disease (2009). Neurology. 2009;72(21 Suppl 4):S1-S136.
• Chaudhuri KR, Healy DG, Schapira AH; National Institute for Clinical Excellence. Non-motor symptoms of Parkinson's disease: diagnosis and management. Lancet Neurol. 2006;5(3):235-245.
• National Collaborating Centre for Chronic Conditions (UK). Parkinson's Disease: National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care. London: Royal College of Physicians (UK); 2006.